I knew today would be a bit crazy, I just did not realized how crazy it would get.
The day started out in a fairly benign way. There was some crisis at the hospital, earlier this morning, so my meeting with the oncologist began an hour late. But the meeting itself was fairly straightforward. We addressed my long list of questions, scheduled a bunch of tests, and had a physical exam.
During the meeting, one of the nurses came in and hooked me up to the Herceptin. And so the day began....
On my way to relax in the day room, Moshe approached me in a panic.
"They can't find it," he told me, with a worried look on his face.
The insurance company, which provides the actual Doxil for me, had called yesterday to inform Moshe that the Doxil was at the hospital since Tuesday.
Only, it turns out that they, in fact, had not delivered the Doxil on Tuesday, nor on Wedneday, nor today.
God bless my husband, he stressed out about the problem, but he fixed it all on his own, which was not quick or simple. I did not have to worry about anything, because he took care of me.
I do not tell him often enough how much I value and appreciate the way he looks after me. On the flip side, I am quick to comment when he falls short, which is just not a good attribute on my part. I am working on changing this, but the change is slow.
Once everything fell into place, Moshe hurried off to work, much later than he expected.
To my great surprise and pleasure, LS, who had to do something that morning at the hospital, came to visit me and ended up spending the day with me. The day ended up being much longer than I expected, and she helped me with all sorts of little details and necessary errands. Moreover, she provided wonderful company, and made the time pass much more pleasantly.
Moshe had fixed the glitch so well, that I was able to start the Doxil as soon as I finished receiving the Herceptin. In theory, I could have gotten out of the hospital at a decent hour. In practice, there is always someone who throws a wrench into the works... One of the nurses told me that my counts were low again and I would need to come in next week to receive another portion of blood.
I really did not want to come in next week. I asked to get the blood today, but the nurse insisted there would not be enough time today.
Never someone to take "no" for an answer without trying to find a way around it, I asked (read: begged) one of the other nurses to help see if I could get the blood today.
As is, next week I have an MRI of my head on Tuesday, an MRI of my right hip on Wednesday (if I get approval from my health fund in time), and my bone drug on Thursday. Three days at the hospital is enough for one week!
Also, though the promise that the blood will help with my energy level did not pan out the last time, I really hoped that this time the blood would help restore some of my energy,
With the help of this other nurse, and of my friend, LS, who ran around the hospital helping the process move along, we managed to get the blood in time.
The infusion finally finished around 4:15.
I walked out of the hospital at 4:30.
I had accomplished quite a bit. In addition to the chemo and the socializing, I mended two pairs of pants for Moshe, and a handbag for me.
I also drank two cups of pea soup, a cup and a half of iced coffee, at least a liter of water, downed several Percocets, and found a friend to pick me up and take me home.
Not bad, for a 7 ½ hour day at the hospital!
I was ready for a nap!
However, after being out all day, my youngest, who had been home, on her own, for several hours, needed some attention. So, I kept her company while she ate. To her chagrin, while I sat with her, I also helped eat most of her mango.... (she offered to share with me, but had not intended to share quite that much.)
After lunch, we sat on the couch and, in response to her lunchtime request, I told her the story of how Moshe and I got married. She knew most of the story, but wanted to hear it again. I think she appreciated the story even more, this time around.
Afterwards, I headed towards my room, and my bed. Somehow, I got distracted along the way, and got sidetracked sorting through school books.
Eventually, I could not stand on my feet any longer. I headed off to bed.
I am beat!
Please daven (or send happy, healing thoughts) for RivkA bat Teirtzel.
With love and optimism,
Baile Rochel Going "Modern"
17 hours ago