Between trying to manage my health and trying to plan a simcha (celebration), we are all at our wits end!
We have had lengthy discussions with three oncologists regarding my upcoming treatment.
My main oncologist recommends Doxil.*
The oncologist with whom we had a phone consultation made several recommendations, all involving Herceptin.
And our semi-local "second opinion" oncologist (who is in the Tel Aviv area), with whom Moshe always insists we meet before beginning any new treatment, agreed that I should switch to Doxil + Herceptin.
She also said that, according to the current (and new) laws, both should be covered by our health fund.
We are not finding the health fund so forthcoming. We are challenging the health fun. At the same time, we are applying to our supplemental insurance for coverage of the Doxil. The supplemental insurance won't cover Herceptin, because I took that drug before I signed up for coverage.
Meanwhile, my markers are shooting through the roof, but we know there is progression, so no one is getting all excited about that.... except Moshe and me. And I am so scared about what has been going on inside my body since my last tests showed progression.
We just cannot play this waiting game. So, we are looking into funding the first few treatments on our own (with help, of course).
Once we get approved for funding, we should be reimbursed.... ("should" being the operative word)
Meanwhile, I am in pain, and sometimes the pain can get quite serious.
Like now, when my hip hurts so much that I cannot sit, or lie, comfortably, and my thigh muscle is having some sort of electric spasm!
My head is exploding with all the things I have to do tomorrow!!!
Our daughter's Bat Mitzvah is THIS SHABBAT!!
She will be reading ALL of Parhsat Balak at our women's Tefillah group!
I am so proud of her!!!
Please daven (or send happy, healing thoughts) for RivkA bat Teirtzel.
With love and optimism,
* Doxil was developed in Israel, by Prof. Alberto (Avraham) Gabizon, who is currently the head of oncology at Sha'are Zedek. (See # 69 and # 70 in this list of Gabizon's professional publications)
more observations from the USA (Chicago day 4-5)
15 hours ago