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Showing posts with label PET scan. Show all posts
Showing posts with label PET scan. Show all posts

Wednesday, September 1, 2010

Tests (Medical Updates)

Last night I had an MRI of my brain, to see how the tumors in my brain responded to the stereotactic radiosurgery that I had three months ago (you can read more about that experience here (1), here(2) , and here (3)).

Tonight, I have an MRI of my right hip, to verify that there is not hairline fracture or anything else that might be causing the pain in my hip and thigh.  Even though an oncological orthopedist (or is he an orthopedic oncologist?) requested the test, the health fund did not agree to cover it.  The health fund wanted me to image the area with a regular CT, but we did that aly  My GP is a miracle man. After three months, he finally got the health fund to approve coverage, just a few hours before my appointment!

I have to make an appointment for an ECHO, to check that my heart is not being damaged from the various chemotherapies.  Hopefully, I will be able to get an appointment for tomorrow, when I have to be at the hospital anyway.  More importantly, I want to schedule the test with the technician who is gentle and never hurts me when she does the test.

In another two weeks (exactly three weeks after my third dose of Doxil, and one week before I am scheduled to receive my fourth dose), I have a full PET scan to see what influence the Doxil and Herceptin are having on my cancer.

In brief, this month is full of tests that will, hopefully, give us an up-to-date picture of what is going on in my body.

Oh, joy.



Please daven (or send happy, healing thoughts) for RivkA bat Teirtzel.

With love and optimism,
RivkA

Tuesday, May 18, 2010

Counting My Blessings (reviewing this past week)

******  warning: long post  ******

So many good things have happened this past week.  I have been too busy to sit down and write!

The day of my PET CT, a good friend, BW, who I do not get to see that often, came to spend the day with me. The intake nurse was a real character; she explained everything in great detail and added a lot of humor to the day. My friend brought lots of great games for us to play, but we did not get a chance to play any of them. We were too busy talking... and sewing. Together we sewed up two major items of clothing for my daughters. After I finished at the hospital, my friend accompanied me (i.e. chauffeured me around town) on a myriad of errands. It was so great to accomplish so much in one day!

Oh yeah, did I mention that when she arrived, she brought three containers of food for my family! She stuck them in the fridge as a matter of course. (get it? as a matter of course??  -- good thing I amuse myself!)

I was tired from all the running around and I knew I had a big day the next day.  Thursday, my youngest daughter's school would be celebrating Yom Yerushalayim, including the "mayatzim" (madrichei yerushalayim tzeirim -- your Jerusalem tour guides) project.  My daughter, along with a team of her 6th grade classmates, would be guiding us on a three hour tour of Ir David (The City of David).  Then, following a communal meal (falafel), we would watch performances of all the younger grades.  Even before I had cancer, this event would leave me both energized (it's such a great program!) and exhausted (it is so tiring!!)!

I planned to rest all Wednesday night and Thursday morning, so I would have enough stamina to get through the big day.

Wednesday night, I had difficulty falling asleep.  My stomach had been bothering since the morning, and it was still churning.  For the first time since I began treatment, I had non-stop diarrhea.  All day, I took pills (Imodium) to stop the diarrhea.  They did not work.  I passed the 6 pill mark, when I was supposed to call my doctor (he was out of the country)… and then the 8 pill mark, when I was supposed to go to the hospital.  I never want to go to the hospital in the middle of the night; but that night would have totally messed me up for the next day!  I needed to sleep.

I was not dehydrated. I had been diligently drinking all day. I even drank a milkshake, to get in some calories and free radicals (salts and sugars). I felt fine. My stomach just would not cooperate.

At around midnight, I called my neighbor, who is also an oncologist (I actually have two neighbors/friends who are top-notch oncologists).  I knew if I called the "on-call," I would be instructed to go straight to the hospital.  I really felt that was unnecessary, but I did not want to be irresponsible.  So I consulted with my neighbor/friend/local oncologist, who I hoped would give me an answer that was not "by the book."  He confirmed that I could stay home and, if need be, I could go to the hospital in the morning, get an IV, and rest there (an option far better than going in the middle of the night!).  Neither option turned out to be necessary.  I had one more episode, after which I was finally able to fall asleep. 

It was not until the next day, when I was feeling a lot better, that I learned that my friend's intention was that I would go straight to the hospital if I had another episode. Thankfully, all's well that ends well.  I was fine the next day and able to rest in my own home, and gather strength for that afternoon's event. 

However, my restless stomach from the day before made me nervous.  I knew there would be no bathrooms once we started the tour, so I popped two pills, "just to be safe," as we left the house.  I am happy to report that I had no problems that day.  Thank God!!

That afternoon, we arrived right on time!  As soon as we got there, I could feel the excitement in the air.  The sixth graders were all in their mayatzim shirts, with voice amplifiers, guiding and directing the parents.

My daughter did such a great job leading our tour group!!  Who would have imagined that just a few years ago, this girl barely spoke above a whisper?  Here she was, full of confidence, reciting her script loudly and clearly.  It was definitely one of those proud parenting moments.

I was impressed by her entire team.  Not just by their excellent presentations, but by the way they worked together, in harmony, making sure everyone had what they needed, stood where they were supposed to, and did not forget what to say.  They did a fantastic job!

My son was in his element as well.  He and another boy from his class had spent several days making sure that their classmates would attend.  They succeeded in gathering almost all the kids from their class and they had a grand old time together.  My son almost blew us off to hang out with his friends, but my eldest convinced him to stay with our group.  I was glad he chose to stay with us.  I enjoy his company (and his help carrying my bag!).

Before the performances, the parents' committee thank the teacher who teaches the kids about Jerusalem from the time they begin school, culminating in this final project.  I was honored to present her with flowers and a class shirt.  It felt fitting to end our tenure at the school this way.

This year is the last year that I will have a child in this school. This was the last time I would attend the Yom Yerushalayim (Jerusalem Day) celebrations. Next year, all my children would go on their own, with their classmates. They would not need me for this anymore. I looked around me, trying to soak it all in.

The shows ended and all the bogrim (graduates) were invited to join the current students on stage, for the "school song."  There they were, all three of my "babies," on stage, embraced by friends and community. My youngest daughter had a huge smile on her face; she knew her class did a great job and the hardest part of 6th grade was over.  My son, surrounded by all his old friends, also had a huge smile on his face as he waved an Israeli flag high over the heads of his classmates.  And my eldest, who also reunited with her classmates, was so free and childlike, dancing with her friends and laughing.  They were home.

The evening ended relatively early.  As the energy slowly dissipated, we made our way home and into bed.

The next day, our youngest two slept in, our eldest went to school, Moshe went to this course he is taking at Ir David, and I went to our friends' daughter's Bat Mitzvah celebration at Nalaga'at, in Jaffa Port.  All the waiters and servers were deaf.  In the middle, they gave a brief "lesson" in sign language.  It was really fun and very interesting. 

That Shabbat, we hosted two girls from Mitzpah Yericho, as part of Shabbat Yerushalayim.  All the youth groups in Jerusalem host kids from other branches, who do not live in Jerusalem.  During the day, after lunch, they all walk to the Kotel where they meet all the other religious kids from the country!!  It is a HUGE "happening!"

The walk takes about an hour and a half from where we live, but the kids never miss it!  There are buses after Shabbat, to take them home.

We hosted dinner in the evening.  Lunch, the kids ate with their youth group and we ate with good friends of ours.  We were three families at lunch, but since most of our kids were with their youth groups, it was actually a very small meal.  We were three "grown ups" (who are all pretty childlike) and five kids (out of 9).  It was fun!

After lunch, I collapsed into bed and slept for hours!  I needed that!

Sunday and Monday were rather mundane.  I had a great experience teaching swimming, but I'll post about that separately.  And, here we are, Tuesday, ever Chag HaShavuot. 

Chag Sameach!!  (Happy Holiday!)



Please daven (or send happy, healing thoughts) for RivkA bat Teirtzel.

With love and optimism,
RivkA

Wednesday, May 12, 2010

PET CT (May 2010)

I was not too worried about the PET CT, until I got the results from the MRI.

The news that two tumors grew, combined with my rising markers, has triggered a bit of anxiety about what else might be growing....

In general, I am pretty proficient in evoking "The Ostrich Syndrome."*  To a great extent, I can pretty much ignore/forget about most things.... until the relevant day.

Well, today is the relevant day.

A good friend is joining me, bringing games (of course!), and we will pass the time with good conversation, and lots of laughter, I am sure.

But, I am, admittedly, anxious.

I will be in the hospital for around three hours (everything takes time in the hospital....).  The PET scan only takes a few minutes (10-20 minutes, I don't remember exactly).  But, 'till you are checked in, and are injected with the radioactive material, and the material circulates in your bloodstream.... well, it all takes time.  And, during that time, there is just no way to ignore the fact that I have cancer.

Then, of course, there is the wait that comes after the test.

Waiting for the results is tough.  You know the results are out there... you just do not know what they are.

The hospital only sends the results to the oncologist.  I understand the logic, but it is frustrating.  It simply adds another step, so it takes even longer to find out the results.

On the one hand, I do not mind extending the illusion that everything is fine.  But, I want to know.

If things really are fine, I want that reassurance.

And, if they are not, well, I need to know that too.  Because that affects how I am treated and if I need to make any changes in my treatment.

Either way, I want to know.

Until I receive confirmation that the results are good (and the cancer is stable), I will be anxious.

I am praying.



Please daven (or send happy, healing thoughts) for RivkA bat Teirtzel.

With love and optimism,
RivkA

* Yes, I know, Ostriches don't really bury their head in the sand.  Still, you all knew what I meant, because the image is strong, even if it is fictional!

Sunday, November 22, 2009

It's Nice When It All Works Out -- friends, Xeloda, PET scans, & Disney

I need to do a PET scan, to see how I am doing.

All the imaging techniques (CT, MRI, PET) scan our bodies in different ways and provide different information.

With a PET, you have to be off chemo for at least two weeks before the scan, otherwise the chemo can influence the results, causing inaccuracies.

So, I am going to be off chemo when we go to Disney!!

Not only will that mean that I will have a bit more energy (I hope!), but I will also be able to eat more, at least by the end of our visit!

We will be spending our last Shabbat with very close friends, who also love food and are amazing cooks!  I am so looking forward to fabulous food!! Not to mention, really good company!

We were not planning on seeing anyone during this visit, besides my parents.  Our focus is 100% on spending quality family time together.

But, because we want to get back to Israel as soon as possible, we will be flying out of Orlando on a Friday and spending Shabbat in NJ.  This way, we can take a motza"sh (Saturday night) flight back home, and arrive on Sunday afternoon.  The kids will have plenty of time to sleep, so they can get back to school on Monday.

My friend was going to come visit me in Florida, until we decided against it. We were both disappointed that we would be "so close and, yet, so far away."  Then the flights, not only made a visit possible, but, made it necessary!

Things really seemed to be falling into place!

When I return to Israel, I will do an MRI of my head and a PET CT of my body.  I always get a bit anxious when I do tests.  I have learned, the hard way, that the results can surprise you, not necessarily in a good way.  Our last head MRI certainly surprised us, davka (on the contrary) in a very positive way.  So, you never know.  Still, until we get the "all clear," there is definitely a cloud of tension and anxiety.

But that is not where my head needs to be now.  (I mean, let's be honest.  My head is always in the clouds.... it just does not have to be in those clouds!)

I am going on vacation!!

We are going to have so much fun living in our fantasy world!!

I am so unbelievably psyched that it will be a chemo-free vacation!!



Please daven (or send happy, healing thoughts) for RivkA bat Teirtzel.

With love and optimism,
RivkA

Monday, November 2, 2009

CT & Ultrasound -- Medical Update

I have been so overwhelmed with the flu, that I realize I forgot to update you about the important stuff. (Actually, I did not realize it, until a million people kept asking me about the results!)

The CT did not reveal any new developments. The radiologist did see a "hint" of something on the liver, so we checked that out.

I did an ultrasound. The radiologist did not see anything worrisome.

So, for now, I seem to be doing well.

Recently, my pain seems to have gone down a bit, so that is also a good sign that the new chemo is working.

The oncologist wants to do a PET scan, eventually, but not now. Apparently, you have to be off chemo for at least 2-3 weeks before doing a PET. The oncologist does not want to stop treatment at this point.

I just started my fifth cycle of treatment with the Xeloda and Tykerb.



Please daven (or send happy, healing thoughts) for RivkA bat Teirtzel.

With love and optimism,
RivkA

Tuesday, July 7, 2009

Free Today?

real post coming soon....

I'm on my way to Hadassah for radiation & a PET scan.

I had a great "date" for today, but her daughter is really sick, so she had to cancel.

If you are around and have the morning/early afternoon free, give me a call if you can come hang out with me.

Meanwhile, I'm bringing a great book with me!



Please daven (or send happy, healing thoughts) for RivkA bat Teirtzel.

With love and optimism,
RivkA

Thursday, November 13, 2008

PET Scan

PET scan today....

Must fast 5 hours before PET scan.

Really tired this morning.

Forced myself to get up and eat a decent breakfast.

Began the 5 hour fast.

An hour into the fast, get a call, there was a "takala" (malfunction), so my scan was moved from 3:30 to 4:30.

I had 5 minutes to eat something, before the next five hours started.

Quick! Eat a clementina! (No clue what that is in English. Tangerine? Clementine?)

Yumm.

Back to the fast.

Can drink water, but nothing else.

Tired.

Get to hospital.

Wait.

Get shot with radioactive stuff.

Glow.

(just kidding)

Wait around in dinky room.

"Here?"

Yeah.

Drink this.

Yuck!

Not as bad as Barium.

An hour later, called in for the scan.

Notice two waiting stations, with comfy chairs and individual TELEVISIONS!!!

Boy did I feel like a second class citizen!

Oh well... I'll know for next time!

My turn for the scan.

Another really narrow "bed" (why do they make these things so narrow?!).

Commented about the music.

Technician said he could change it.

Yay.

I asked for classical music.

Good stuff.

Lie down; arms over my head. Hold them there for.... TWENTY FIVE MINUTES!

Scan is over.

Go home.

Wait.



Please daven (or send happy, healing thoughts) for RivkA bat Teirtzel.

With love and optimism,
RivkA

Wednesday, October 29, 2008

Medical Update

So, my doc does not see any change in my CT or in my bone scans, though the images of the tumors seem more "prominant."

He wants me to get a PET scan.

He also wants me to go for a second opinion.

He is perplexed (by the combo of clean liver and lungs, rising markers, prominant bone tumors, and increasing pain) -- he wants a "fresh" opinion, from someone from a different hospital.

It is totally cool that he has no ego about this thing, and is actually eager for a second opinion.

We'll see how quickly I can make all these appointments, and how much I have to "fight" with my kupah (health fund) to cover the PET scan.

Oh, the fun that awaits me!



Please daven (or send happy, healing thoughts) for RivkA bat Teirtzel.

With love and optimism,
RivkA