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Tuesday, September 7, 2010

Happy Little Home-Maker

I am so impressed by my youngest daughter.

A few months ago, one of her good friends from school gave my daughter a really nice cookbook for her Bat Mitzvah.

My daughter decided she wanted to prepare our meals for the holiday. She carefully went through her cookbook and chose the recipes she wished to prepare.  With a little teamwork, Moshe and I convinced her to settle on two main dishes and two appetizers.

On Sunday, I helped her prepare a shopping list.  On Monday, our friend who shops for us, took her shopping to pick up the ingredients she needs.  Today, Tuesday, she started cooking.

Since I was too tired to help much today, my daughter chose to start with a simple, but very time consuming, recipe; we both felt she could probably make it on her own.

She made Sambusas -- dough filled pastries.

The filling came out amazing and the Sambusas look great.  They do not seem to have puffed up as we expected, and we are not quite sure why.  Nevertheless, my daughter tasted one and they taste good.

Pretty impressive for her first dish!



Please daven (or send happy, healing thoughts) for RivkA bat Teirtzel.

With love and optimism,
RivkA

Monday, September 6, 2010

Angels, Shoulder Pain, & Shiatsu

Sunday morning, I woke up with excruciating pain in my right shoulder, different from any pain I experienced before.  The focal point of the pain was deep inside my shoulder, and the deeper I inhaled the more it hurt. The pain felt like muscle pain, and I hoped it would work itself out during the course of the day.  Meanwhile, I concentrated on slow, shalow breathing. 

I slept almost all day, partially because I felt so tired and weak, and partially to escape the pain.

Nothing changed.

Midday, I contacted my friend who does Shiatsu.  She had quite a busy day, and asked if I would be up for a treatment in the evening.  Desperate, I told her she should come whenever she could and I would make it work.

I spent the afternoon helping my youngest daughter, who is really into cooking, go over what she wants to prepare for Rosh HaShannah, make a shopping list, and study for her math test the next day.  I do not know from where she gets her enthusiams about cooking, but I am trying to encourage her and be supportive.  She would rather cook than do math; I would rather do math than cook!  I really enjoyed helping her with math, but we did not have a chance to finish before she had to leave for gymnastics. 

Then my son came home. One moment he behaved so charmingly, the next moment he snapped at me, then he again acted like a perfect gentleman, then he bit my head off, and so on.  I had promised to help him make his lunch, and I was determined to fulfill my promise.  Waking up in the morning to make sandwiches for/with him is just too much for me.  I cannot do it. 

My eldest daughter behaved pretty much the same as my son: pleasant one moment, harsh and critical the next.

My kids completely wore me out!

I could not deal with any more stress.... I escaped into my bedroom.

A few minutes later, my angel friend callled: "Are you still up for a treatment?" she asked, ever so sweetly.

We usually do shiatsu in my living room, but I really needed a break from my kids, so she treated me on my bed. 

For the first time all day, I felt some relief. 

When she finished, I did not want to move.  I closed my eyes and fell into a deep sleep.

At one point, Moshe woke me and asked me if I felt comfortable the way I was lying.  I shifted to a more comfortable position, closed my eyes, and resumed my slumber.  Though I woke up briefly a few more times, I quickly returned to sleep, and slept deaply until the morning.



Please daven (or send happy, healing thoughts) for RivkA bat Teirtzel.

With love and optimism,
RivkA

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In addition to practicing Shiatsu professionally, Idit volunteers her services to me and to the Yuri Stern Foundation.


Idit has a wonderful, warm, and relaxing treatment room in her home.
For regular treatments or to treat yourself to something special:
Idit Amir
077-757-8949
052-660-8442
Idit Amir amir.idit@gmail.com

Sunday, September 5, 2010

Missing Blog Post

Anyone have any idea about how to find a blog post that seems to have disappeared?

I could swear I wrote one on Sunday night and it has vanished.



Please daven (or send happy, healing thoughts) for RivkA bat Teirtzel.

With love and optimism,
RivkA

Saturday, September 4, 2010

Tough Times

Summer is over, and I have been having a tough time.

Thank God, I had the strength to do things with my kids.  We all really had a great summer.

That said, I spent most of my time in bed.

I am still trying to find the right balance of pain meds.  This Thursday, I consulted with the pain specialist at my hospital and he said I should up the dose of my pain patch by 50%.  I will try it, starting tomorrow, when I switch the patch.

Meanwhile, I am so tired, I just want to sleep all day long.  I read a bit here and there, and then I am ready to go back to sleep.

The cancer makes me tired.  The chemo makes me tired.  The pain makes me tired.  The pain meds make me tired.  My kids make me tired.  Doing everything makes me tired.  Doing anything makes me tired.

Complain, complain, complain.....



Please daven (or send happy, healing thoughts) for RivkA bat Teirtzel.

With love and optimism,
RivkA

Friday, September 3, 2010

The Hitchayvut from Hell

In order to receive medical care, our health funds need to provide us with a "hitchayvut," a document committing to pay for the process.

For most procedures, this is a fairly benign procedure, that is time consuming and annoying, but straightforward and not difficult.

It is a bit more complex when applying for some of the more expensive procedures, like a CT or MRI.

Sometimes, the health fund refuses coverage, but usually overturns the decision on appeal.

Recently, they continually refused to cover an MRI of my hip.  First they insisted I do a CT, until I provided them with the documentation that I already did a CT.  Then we sent another letter explaining that an orthopedist, who specialized in orthopedic oncology (or oncological orthopedics), requested the MRI, since the CT showed nothing.  The orthopedist wanted to verify that their are no hairline fractures, and felt an MRI might provide us with more information.

It took three months to get an MRI appointment, I thought I would receive a hitchayvut in plenty of time.

Instead, it took three months of arguing with the health fund, with the dedicated help of my GP and his staff.

As the appointment approached, I got increasingly anxious. 

At one point, I had this crazy conversation with my GP and my oncologist -- both who were convinced they understood the other.  My GP explained that my oncologist no longer thought the MRI was necessary, and my oncologist was convinced that my GP was working on getting the approval. 

I begged my oncologist to write another letter, which I then sent to my GP, who sent it in and.... got approval for the MRI, the DAY BEFORE my appointment!!

What a relief!!

My doctor's office sent the hitchayvut to the hospital.  I called to confirm the hospital received it.  They did.

BUT.....

"The code is wrong," Sharon told me.  "It should be Code 73721, for your "perek yerech" (hip)."

I panicked.

I called my doctor's office.  The secretaries promised to take care of it.  I would have to wait until the offices of the health fund re-opened for their afternoon hours.

Worse case scenario: I could leave a check deposit and they would work out the details afterwards.  The check would not even be deposited.

An hour, or so later, a representative from the health fund called me.

"The code is fine," she told me.  "The code is for your "agan" (pelvis) and your doctor's referal is for an MRI of your pelvis.  Everything is in order."

I breathed a sigh of relief and finally fell into a deep sleep.  My appointment was at midnight, and I needed to get some rest.

Big mistake.  I should have called the hospital again... (hindsight vision is always 20-20)

At a quarter to midnight, I arrived at the hospital and went to register for my appointment.

They could not find the hitchayvut. 

I told them that I had confirmed that afternoon that the hitchayvut was there.  They looked.  And looked.  The did not find it.

Someone else looked.  And looked.  And looked.  He started checking even those unlikely places....

And he found it.

I was so grateful. 

I really did not want to leave a check deposit.  That would be just one more thing to follow up....

The MRI staff took me in right away.

They did not fight with me when I insisted that the technician use the smallest needle they have (the yellow one they use for babies!) 

Then, they lay me down on the MRI machine.  I was so exhausted from the ordeal that, despite the loud banging of the MRI, I fell into a deep sleep.

After the MRI, the technician came to remove the IV.

She noticed that I was scratching my arm, and gave me a funny look.

"Do you itch?" she asked, still giving me that strange look.

I had not noticed. 

I paused for a few moments... then I noticed.  I itched all over.

She quickly gave me two pills (4 mg) of ahisten, an antihistamine.

She kept asking me if it was difficult for me to breathe.

Breathing was not a problem, but I defnitely itched.

"You are allergic to the contrast material," she declared, writing out a note.

She debated whether she should send me to the emergency room.  If she did, I would be there all night.

We waited another ten minutes.  I still itched.  I had no problems breathing.

I went home.

I really did not want to stay.

What a night!



Please daven (or send happy, healing thoughts) for RivkA bat Teirtzel. With love and optimism, RivkA

Wednesday, September 1, 2010

Tests (Medical Updates)

Last night I had an MRI of my brain, to see how the tumors in my brain responded to the stereotactic radiosurgery that I had three months ago (you can read more about that experience here (1), here(2) , and here (3)).

Tonight, I have an MRI of my right hip, to verify that there is not hairline fracture or anything else that might be causing the pain in my hip and thigh.  Even though an oncological orthopedist (or is he an orthopedic oncologist?) requested the test, the health fund did not agree to cover it.  The health fund wanted me to image the area with a regular CT, but we did that aly  My GP is a miracle man. After three months, he finally got the health fund to approve coverage, just a few hours before my appointment!

I have to make an appointment for an ECHO, to check that my heart is not being damaged from the various chemotherapies.  Hopefully, I will be able to get an appointment for tomorrow, when I have to be at the hospital anyway.  More importantly, I want to schedule the test with the technician who is gentle and never hurts me when she does the test.

In another two weeks (exactly three weeks after my third dose of Doxil, and one week before I am scheduled to receive my fourth dose), I have a full PET scan to see what influence the Doxil and Herceptin are having on my cancer.

In brief, this month is full of tests that will, hopefully, give us an up-to-date picture of what is going on in my body.

Oh, joy.



Please daven (or send happy, healing thoughts) for RivkA bat Teirtzel.

With love and optimism,
RivkA

Crossing Over to the Other Side

I finally succumbed to all the pressure and added supplements to my diet.

My youngest daughter, who is our milkshake maven, makes me a special "Ima milkshake" with about a third of a can of Ensure.

I can drink a large cup of milkshake every day or two.

I also have a powder supplement, that I got from friends.  I need to figure out how much to add to make a tasty milkshake.

It is difficult for me, emotionally, to be adding these supplements to my diet.  But I need to find some solution to being so weak and tired.  I know that I am not eating enough and if supplementing my diet will help, then I have to do it. 

I started supplementing, here and there, about two weeks ago.

I have not yet noticed a difference in my energy level.


Please daven (or send happy, healing thoughts) for RivkA bat Teirtzel.

With love and optimism,
RivkA