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Showing posts with label diagnosis. Show all posts
Showing posts with label diagnosis. Show all posts

Thursday, May 6, 2010

Brain MRI -- Medical Update (May 2010)

Mixed results, mostly good.

Most of the tumors in my brain continued to shrink and some are no longer visible.

Two tumors grew larger.

Sunday I am meeting with the head of Radiology at Hadassah to discuss Stereotactic Radiosurgery (you can find additional info here).  I read a lot about this procedure when I was first diagnosed with brain mets, last June. 

I do not know if the radiologist will do the procedure that same day or not (I suspect not).

I will know more after our meeting.

Now that we have the report, things seem to be moving fairly quickly.

This is not great news, but it is not devastating either (at least, that's what I keep telling myself).

Hopefully, this should not affect my overall diagnosis.

It is just another bump in the road.

I will do the radiation, and keep on moving forward.



Please daven (or send happy, healing thoughts) for RivkA bat Teirtzel.

With love and optimism,
RivkA

Monday, March 8, 2010

In The Beginning....

I did not believe I would get cancer. (Never mind that my grandmother had BC (breast cancer), and that my mother had BC, twice)

My mother told me to start getting check ups (mammograms) when I was 30.  I did not want to, but she would not stop bugging me.  Eventually, I went to my GP for a referral.  I informed him that my mother and grandmother both had breast cancer.  He responded with one question: "Do you have any aunts or cousins who had breast cancer?"  I answered, honestly, if a bit deceivingly, "no."   "Then you don't need to go for mammograms," he responded.  That was good enough for me.  I reported to my mom, and pushed the thought of BC and mammograms out of my mind.

A few years later, two friends of mine were diagnosed with BC.  They were my age!  Their diagnoses woke me up.  I went back to my doctor, who asked me the same question: "Do you have any aunts or cousins who had breast cancer?"  This time, I gave him a complete answer:  "I do not have any aunts or cousins; both my parents were only children, as was my grandmother."  Basically, there were no other family members who would get BC before me.  I was, so to speak, the "next in line."  In light of this "new" information, he agreed with my mom, "You should be getting regular mammograms." 

Then I asked him about this weird thing in my breast. I admitted, "I've felt it for several years."  He did a quick manual exam, and determined it was nothing to worry about. I felt he dismissed it very quickly.  A few weeks later, I went back and asked how he knew whether the thing I felt in my breast was really nothing (a question which had been nagging me since my visit).  He did another manual exam.  This time, he responded, "I want you to see the surgeon right away."  "Why now?" I questioned.  "Because it is bigger than the last time," he replied, heading out the door.  A minute later, he returned.  "You're in luck," he told me, "the surgeon you should see is in, and can see you now."  Without further ado, I found myself sitting in the surgeon's office, a little surprised at how fast things seemed to be moving.

The surgeon spoke with me for a few minutes, then did his own manual exam.  Then he gave me a referral for a mammogram, and directed me to a particular clinic, with one of the top radiologists in this field.  I got an appointment right away.  (I don't remember for sure, but I think the surgeon might even have called the clinic.)

The mammogram showed a "radial scar."  It was not a malignant tumor, but the shape indicated that it could become one in the future.  "It should be removed," I was told, matter-of-factly.

I scheduled the surgery, in the day clinic, at the medical center.  The tumor was removed.  The pathology was benign.  We were done.

After that, I went for annual mammograms and bi-annual manual exams by the surgeon.

The mammograms were especially tedious, because the visit (including the mammogram, an ultrasound, and a consultation with the radiologist) took all morning (at least 3-4 hours). 

At first, Moshe would accompany me.  Eventually, I told him there was no need.  It just wasted both our time.  These exams were routine and uneventful.... for five years.

In 2007, the radiologist noticed tiny calcifications in my milk ducts.  As part of his exam, he took a core biopsy.  A week later, his office called and told me that it is their policy not to give any results over the phone and could I please come in on Sunday afternoon.  I "knew" how long things took there, and told Moshe, who was in the middle of a "crunch" at work, that I would go on my own.  It did not occur to me that there could be any reason I would need him with me.

When I arrived, there was no one else in the waiting room.  Still, I did not feel any concern.

Then, the radiologist called me in.  He showed me the pictures from the mammogram.  He showed me the white spots that were spread throughout my milk ducts. He explained that calcifications and cancer cells often look the same.  Then, in a calm, quiet voice, he informed me that some of the white spots I was seeing were cancerous.

I did not understand.

The radiologist, quietly, and gently, continued to explain.  This is very early; most of the cells are contained in the milk ducts; there might be a small invasion into the rest of the breast tissue.... we will know more after the surgery.

What???

I was in shock.

I was not at all prepared to hear this news.

I needed to talk with Moshe, but he was not there.

This was not supposed to happen.

I did not know what to do.

Thankfully, the kind staff did know what to do.  The secretary, with whom I had a warm relationship, gently guided me to a waiting room where I could be alone, and call Moshe.

I called Moshe.  Then I started to cry.

We spoke for a long time.

When I was calm enough to drive home, I thanked the staff.  They had already called my surgeon and arranged an appointment for me for the next day.

I drove home in a stupor.

I was still stunned.

This could not be happening to me.  I did everything I was supposed to do. 

I was not supposed to get cancer.

This could not be happening to me.




You might also be interested in this related post:  The Me I Was Before


Please daven (or send happy, healing thoughts) for RivkA bat Teirtzel.

With love and optimism,
RivkA

Wednesday, May 20, 2009

Choose Life

Our lives are filled with choices.

Almost two years ago, when I learned about my diagnosis, I made a choice, a conscious choice, about how I would live my life.

I stumbled, by accident, on frightening survival statistics of women diagnosed with metastatic breast cancer: only 20% are still alive five years after their diagnosis.

I determined right then and there that I intended to be part of that 20%.

I wish I could remember which angel directed me to the fabulous article by Stephen J. Gould, "The Median is Not the Message". I think it might have been someone from Sharsheret, a wonderful Jewish American organization that provided me with tremendous support in those devastating initial weeks, before I found appropriate support here in Israel.

If you have not read it already, then I recommend doing so now. Go ahead. It will reshape the way you view the world.

I read "The Median is Not the Message" and realized that my determination to "beat the odds" is a rational possibility and not just "wishful thinking."

Meanwhile, Moshe was reading everything he could about my disease. My dear, loving, sensitive husband was devastated by the statistics.

I knew that Moshe, for whom logic and cold science are fundamental to how he views the world, needed to read the article.

That article was the greatest gift I could give him.

But I did not stop there. I had already begun formulating my 20-year-plan.

I figured that if I did end up living for another 20 years or more, it would be an aweful shame to live all that time worrying about dying tomorrow.

Besides, I joked, I "just need to live long enough for them to discover a cure."

There is so much research going on every day, who knows what new medicines and miracle cures might be just a few years down the road?

We do not know what the future will bring. So why live expecting the worst? What a waste of our valuable time and energy.

In the past, I loved the adage "expect the worst, hope for the best, and you will never be disappointed." Suddenly, this approach to life no longer served me well.

I shifted paradigms.

I chose to expect the best.

I chose to believe that I would live, that I would have a future.

In Parshat Nitzavim, which we read on Shabbat, just before Rosh HaShanah, during the time when Jews are focussed on self-evaluation and repentence, Moshe Rabeinu (our teacher; not my husband) addresses Am Yisrael (the Jewish People) and proclaims:

הַעִדֹתִי בָכֶם הַיּוֹם, אֶת-הַשָּׁמַיִם וְאֶת-הָאָרֶץ, הַחַיִּים וְהַמָּוֶת נָתַתִּי לְפָנֶיךָ, הַבְּרָכָה וְהַקְּלָלָה; וּבָחַרְתָּ בַּחַיִּים, לְמַעַן תִּחְיֶה, אַתָּה וְזַרְעֶךָ
(דברים ל:יט)
I call heaven and earth to witness against you this day, that I have set before thee life and death, the blessing and the curse; therefore choose life, that thou mayest live, thou and thy seed (Deuteronomy 30:19)



Please daven (or send happy, healing thoughts) for RivkA bat Teirtzel.

With love and optimism,
RivkA